Freak Things

We found out Grace has Bilateral Superior Semicircular Canal Dehiscence (an absence or thinning of the bones in the ear that may or may not cause other issues).  Ugh.  Apparently it’s a genetic flaw. How can there be TWO freak things wrong with my baby? That feels like two, well not two but TWO freak things are wrong with me. And, oh, that makes me ache. I know in my head that’s irrational- that these are just freak things-v but that’s still how it feels…sometimes. Not all the time.

Instead of dwelling on those circular thoughts I decided to put them away to make room for enjoying good old fashioned play time. We have compartments, remember? I packed up the first double stroller we’ve found that fits in the trunk of our Sedan (thanks Mom and Dad!) and headed to “big lake” (which is really just a moderately sized lake inside “North Park” but since I can’t say park without implying playground we say lake– following?).

Do you see those little ears? Did you know there are tubes in there? No big deal but they’re there.

See these little ears? Did you know bones are missing in there? Did you know she can’t hear you singing (yet)? Did you know she can’t hear those birds? No big deal, but still. Still.

I notice everyone’s ears now. Which is odd because its a weird body part to notice. The audiologist exclaimed, “Oh my gosh she has the CUTEST little ears I’ve ever seen!” when making Gracie’s ear molds. Really? Are ears cute? Now I’m noticing.

So I’m sorry if you’re self conscious about your ears because, well, I’m looking at them.